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Showing posts with label neuropathy. Show all posts
Showing posts with label neuropathy. Show all posts

Monday, April 20, 2009

Chemo 15

We arrived a bit later than normal. We went up to the infusion ward and they took Scott's blood. Then we headed down to the Lombardi Cancer Center and we met with Amy, Dr. Marshall's LPN. We talked a lot about Scott's headaches and his neuropathy. She suggested that we reach out to a neurologist just to see if there is something else that can be done. He rated some of the headaches a 7 on a scale of 1-10.

It was a fairly uneventful chemo session. Scott says he can feel his energy returning and if it wasn't for the headaches and the pain in his hands/feet, he would almost feel somewhat normal. The one thing Scott sometimes forgets is that even though he has some energy back, he has to take it easy. He worked the AOL Charity event on Thurs and then with all that went on with Scully and taking Hannah to a Father/Daughter dance on Saturday night, he was worn out and in pain.

Saturday, April 4, 2009

G'town

We had a fairly uneventful day at G'town. We met with a student doctor first who had us review our entire history. He was a nice guy but you could tell he was nervous asking us all the normal questions about the history of our journey. As I have mentioned before, Scott is still having headaches. Dr. M does not think they are bp related, so Scott will be getting a head CT just to be safe. Dr M said he really does not think they will find anything but may as well cover all bases.

We also talked about the neuropathy. Scotty is finding that its getting harder to do fine motor skill tasks like tying shoes, opening things for the kids etc. Dr M said that in a small percentage of patients they find the neuropathy won't show up until after the oxyciplatin has been stopped and could take up to a few years to recover.

It took a while to get the Avastin once we were up in the infusion room. I took a nap as usual. Scotty loves to laugh at me about that. I can sleep just about anywhere. We got home around 2p and Scott rested. He had yet another headache and I did some work and then went and got the kids. He was in bed by 8p.

I am having our neighbor Timmy come over tonite to babysit so we can go out to a movie and dinner. It's nice that Scott isn't super exhausted all the time. We can actually get back to doing some of the stuff we used to do. Gotta appreciate whatever we can.